Category: News

How can researchers deal with incidental findings? Guidance document gives practical tools

Incidental findings are a major ethical concern in biomedical research. Consistent policies and practices for the detection, management and communication of incidental findings across biobanks are lacking in the Netherlands. Current international ethical guidance suggests that researchers should… Read More

Roadshow PALGA Portal in full swing!

The PALGA Portal, the one-stop-shop to request pathology data and material from diagnostic pathology laboratories, is up and running for two years now. A good reason to visit all 43 pathology laboratories to recall the purpose of the… Read More

Save the date: 4th Health-RI conference!

We are pleased to announce that the 4th Health-RI conference will be held in Utrecht, the Netherlands, on Thursday, January 17, 2019. The program will focus on the future of Health and Medicine and the required support role of science… Read More

Vacancy: Project member ELSI Servicedesk (32 hours)

This vacancy is in Dutch Projectmedewerker ELSI Servicedesk (32 uur) Bloed, tumorweefsel en beelddata die worden verzameld in het kader van diagnostiek of behandeling van een patiënt, worden veel gebruikt voor wetenschappelijk onderzoek. Met de opkomst van personalized… Read More

KNAW advisory report on Big Data in Research Involving Personal Data

The BBMRI-NL network can help researchers in the health domain to conduct their research successfully and at full speed. In its advisory report on Big Data in Research Involving Personal Data of May 15th, the KNAW (Royal Netherlands… Read More

BBMRI voucher results in practical research tool for high school students and teachers

With the online program ‘Smart steps in your Own Research’, high school seniors will be better prepared for their profile assignments and final exams. Developed by Eline Slagboom and Joyce Vriezen (both LUMC) and Gonneke Willemsen (VU), and… Read More

Researchers should not fear the upcoming General Data Protection Regulation

In an interview with Onderzoek Nederland, Lex Bouter (Professor of Methodology and Integrity, VU and VUmc, and chair of COREON, the commission on Research Regulation), explains why researchers fear the upcoming General Data Protection Regulation, and that these… Read More

Lygature is hiring a Program Manager Data Infrastructure

Are you an ambitious life science PhD who believes in pioneering medicine together? Someone who has in-depth scientific knowledge, and wants to develop the organizational and communication skills to manage public-private research partnerships in the Netherlands and on… Read More

Major Investments in Netherlands X-Omics initiative

Integrating quantitative data from different pools of biological molecules (omics) is key to developing novel personalized health solutions. On April 12th 2018, the Netherlands X-Omics Initiative has been awarded a EUR 17 million infrastructure grant as part of… Read More

Article describes the importance of cohort studies in the post-GWAS era

A huge progress has been made in identifying genetic variants that modify individuals’ predisposition to common diseases. Unfortunately, the understanding of these genetic variants remains limited. In this article, opportunities for using large-scale cohort studies, to investigate the… Read More