Health Registry Linkage Code

The Health Registry Linkage Code establishes a mechanism for joint review by medical-ethical review boards of researchers’ requests to link their data across multiple registries and biobanks. Such requests have always been dealt with individually and differently by each of the pertinent review boards, causing considerable delay, confusion and inconsistent if not conflicting assessments, even though the statutory requirements used for such evaluation are the same. Launched in September 2015.

Read the (Dutch version) of the Code