The donor as partner

In November 2014, the book The donor as partner was distributed among biobanking coordinators and patient advocacy groups. The book sums up the methods and levels of patient participation in the governance of biobanks, and serves as a guideling for biobanks and participants alike to find the most appropriate model of participation for their specific situation. You can find the pdf here, in English and Dutch (or you can order a paper copy by sending an email to