08 December 2020
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How to make health data available for research? Expert Meeting #3

BBMRI.nl and Health-RI organised three virtual expert meetings to discuss different practical approaches to make health data available for scientific use. Different approaches, all with their own strengths and weaknesses.

A health research infrastructure is crucial to enable optimal access to knowledge, tools, facilities, health data and samples. It enables a healthcare system offering sustainable and affordable personalized medicine and health.

But how should this infrastructure be shaped? Which organisations currently provide such services? And how do they provide access to their data?

During the third meeting held on the 26th of November, Trynke de Jong presented the processes to find, access, request, share and link data within Lifelines. Pascal Suppers highlighted the experiences of DataHub.

Here you can read the reportview the slides or see a recording of the meeting.

This series of expert meetings focused on providing examples of current data sharing procedures, available tools and challenges faced. Follow-up expert meetings will be organised during 2021 to discuss specific topics in more detail and to strengthen the data sharing community. Please contact Robin Verjans (robin.verjans@lygature.org) to inform us about the topics you prefer to discuss in-depth during future events or for any additional questions or remarks.