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How to make health data available for research? Expert Meeting#1

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BBMRI.nl and Health-RI organised three virtual expert meetings to discuss different practical approaches to make health data available for scientific use. Different approaches, all with their own strengths and weaknesses.

A health research infrastructure is crucial to enable optimal access to knowledge, tools, facilities, health data and samples. It enables a healthcare system offering sustainable and affordable personalized medicine and health.

But how should this infrastructure be shaped? Which organisations currently provide such services? And how do they provide access to their data?

In the first expert meeting on the 29th of October 2020, Fatima El Messlaki from CBS, (Statistics Netherlands) and Saskia Houterman from the Netherlands Heart Registration (NHR) presented how they find, access, request, share and link data within their organisations.

Here you can read the reportview the slides or see a recording of the meeting.

The next virtual expert meeting will be held on the 12th of November from 14.00-15.00. If you are interested or have any questions, please contact Robin Verjans (robin.verjans@lygature.org).

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