23 November 2020
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How to make health data available for research? Expert Meeting#2

BBMRI.nl and Health-RI organised three virtual expert meetings to discuss different practical approaches to make health data available for scientific use. Different approaches, all with their own strengths and weaknesses.

A health research infrastructure is crucial to enable optimal access to knowledge, tools, facilities, health data and samples. It enables a healthcare system offering sustainable and affordable personalized medicine and health.

But how should this infrastructure be shaped? Which organisations currently provide such services? And how do they provide access to their data?

In the second meeting on November 12th, Wanda Hermans-Van Ast and Erik van Iperen presented the processes to find, access, request, share and link data within the CAPACITY study of the Durrer Center.

Vincent Ho and Peter Prinsen presented the data request, -sharing and -analysis procedures within the Netherlands Comprehensive Cancer Organisation (Integraal Kankercentrum Nederland; IKNL) .

We prepared a meeting report, you can also view the slides and watch a recording of the meeting.

The third and last virtual expert meeting will be held on the 26th of November from 14.00-15.00. If you are interested or have any questions, please contact Robin Verjans (robin.verjans@lygature.org).