Mutual understanding is key.

"It is important for researchers to listen to citizens and patients and learn where they have given their consent for and what they find important to study with their biomaterials" - Huig Schipper

Left: Huig Schipper, member of the the Patient and Public Advisory Council, Patient advocate for Inspire2live. 

It is important for researchers to listen to citizens and patients and learn where they have given their consent for and what they find important to study with their biomaterials. The other way round is equally important. The public needn’t be overly afraid of risk for privacy. Voluntary participation from citizens and patients makes biobank research possible. The Patient and Public Advisory Council has managed to play a substantial role in this, and I am confident we will continue to do so.