ELSI Servicedesk

The ELSI Servicedesk offers guidance on and answers to the ethical, legal and societal questions around Personalized Medicine research faced by life science professionals, policymakers and patients. The website provides frequently asked questions with answers, and the opportunity to contact the helpdesk, where one of the ELSI experts answers questions.

About BBMRI-NL’s ELSI Servicedesk

The ELSI (Ethical, Legal and Social Implications) Servicedesk offers guidance on and answers to the ethical, legal and societal questions around Personalized Medicine research faced by life sciences professionals, policymakers and patients. The website provides frequently asked questions with answers, and the opportunity to contact the helpdesk, where one of the ELSI experts will answer your questions.

Why BBMRI-NL’s ELSI Servicedesk?

Personalized medicine is strongly emerging. Treatments are more focused on the individual patient and his or her unique characteristics and disease. Expectations around this targeted approach are high. There are however many uncertainties, for example how to correctly deal with large amounts of human tissue and genetic data. How can researchers guarantee data protection and ensure privacy? The ELSI Servicedesk helps to answer the questions of researchers, caregivers, patient advocates and policy makers on these topics.

Intended users

The ELSI Servicedesk is designed to answer questions from researchers, caregivers, patient advocates and policy makers.

Using BBMRI-NL’s ELSI Servicedesk

If you have questions relating to ethical, legal or social issues, visit the ELSI Servicedesk at www.elsi.health-ri.nl and take a look at the frequently asked questions to see if your question is answered there. If your question is not answered by one of the frequently asked questions, please submit your question via the contact button or by phone (Mon-Thu 13.30-16.00, +31 (0) 88 - 116 7500).

Additional information

The ELSI Servicedesk, coordinated by the Netherlands Cancer Institute, is initiated by BBMRI-NL and Federa-COREON. This project 846003101 has been made possible by ZonMw, through funding by the ‘Goed Gebruik Geneesmiddelen’ research program Personalized Medicine. The Servicedesk is part of Health-RI, the national infrastructure for personalized medicine and health research.

For more information on BBMRI-NL’s ELSI Service Desk, contact: