Guidance

Besides scientific publications, BBMRI-NL has (co-)produced several practical guides for use within biobank research, such as the revised Code of Conduct for Responsible Use of Human Tissue and Medical Research, the guide for handling incidental findings, and the Handbook for Adequate Natural Data Stewardship.

Code of Conduct

In 2011, the Committee for Guidelines in Research (COREON in Dutch) within Federa (the Federation of Dutch Medical Scientific Societies) revised the ‘Human Tissue and Medical Research: Code of Conduct for responsible use‘. BBMRI-NL was one of the partners that contributed to this revision. The code is the Dutch standard for the use of human tissue for scientific research.

Guidance for the detection, management and communication of incidental findings

Within BBMRI, a guide was developed that presents a practical and ethical frame for detecting, dealing with and informing about incidental findings in (biobank) research. The guide does not necessarily provide answers but discusses possible options and best practices. This service was funded as a BBMRI-Voucher project and developed in collaboration with BBMRI-WP6. The final version of the guide is available as an interactive PDF. For more information about the guide, contact Eline Bunnik.

Handbook for Adequate Natural Data Stewardship

The Handbook for Adequate Natural Data Stewardship (HANDS) provides guidelines on data stewardship and a practical toolbox for researchers at the eight Dutch University Medical Centres (UMCs). The Handbook provides direction and information for all people involved in data stewardship and is meant to assist you in drafting up your own data management plan. The content of HANDS is subject to change and will continually be improved.